The Five Worst Things I Have Done Since Being Diagnosed with MS

This is an interesting and brutally honest look at the decisions someone who was diagnosed with MS made, and what she wishes she did differently.
I can identify with #5 wholeheartedly – I still eat waaaay too much sugar, and sometimes when I just don’t feel like moving – I don’t. An excellent read! Please share!

The Five Worst Things I Have Done Since Being Diagnosed with MS

Multiple Sclerosis: The Ugly Truth

By Marc Stecker-Wheelchair Kamikaze—March 7, 2015

(Warning: the following essay contains frank descriptions of the physical ravages that can result from Multiple Sclerosis, and may be disturbing to some readers. Those who are sensitive, or would simply rather not know, should stop reading now. Really.)

My Forget Me Not


My medic alert bracelet is my forget me not, it reminds me not to take life for granted.

About 8 years ago, the big toe on my right foot became numb and it has never gone away. That was just the beginning of my journey with Multiple Sclerosis. Multiple Sclerosis is a progressive illness which slowly robs you of your ability to move. Some see it as a death sentence, and admittedly, there are some extremely difficult days – but it’s not a death sentence. I started to see having MS as an opportunity to start learning about my loving God. I remember writing in my journal in those early days that I’d hated my body so much as a teen that it had decided to leave me! But we are on much better terms now, and I am grateful for what my body can still do, despite this illness robbing me daily. I also thank God each day, for all of the blessings he continues to bestow on me. What an awesome God.

Life can change in a moment. This is part of why doing this challenge is so important to me. I need to remember and write things down while I can. Maybe you do too? I’m just saying… Please don’t take for granted that life will always be exactly as it is right now in this moment.

Do you have a Forget Me Not? Is there something that reminds you of who you are, and of your blessings?


I am taking part in the Write 31 Days Challenge.

Write it Down!

Learn more about Multiple Sclerosis

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What is Multiple Sclerosis?

Ms nervesFirst things first – What is Multiple Sclerosis?

Multiple sclerosis is a chronic, unpredictable disease of the central nervous system (the brain, optic nerves, and spinal cord). It is thought to be an autoimmune disorder. This means the immune system incorrectly attacks the person’s healthy tissue.
There are different types of MS – so just knowing one person with the illness does not make you an expert – no two cases are just alike.

What can MS cause?
MS can cause blurred vision, loss of balance, poor coordination, slurred speech, tremors, numbness, extreme fatigue, problems with memory and concentration, paralysis, and blindness and more. These problems may be permanent or may come and go. Something that makes MS a difficult disease to diagnose and treat is the fact that sometimes it is an “invisible ilness”. You can look ok on the outside and be going through hell on the inside. This also makes things difficult for some people with MS, because other’s won’t/don’t believe them until their symptoms have progressed.

Who does MS affect?
Most people are diagnosed between the ages of 20 and 50, although individuals as young as 2 and as old as 75 have developed it. More women are diagnosed with MS than men, but more men are diagnoised with progressive Multiple sclerosis. MS is not considered a fatal disease as the vast majority of people with it live a normal life-span. But they <s>may</s> will struggle to live as productively as they desire, often facing increasing limitations. As many as 2.5 million people in the US are affected by Multiple Sclerosis. Chances are you know at least one person with the illness.

Factual information provided by the National Multiple Sclerosis Society

My Life with MS (Multiple Sclerosis)

Last week Wednesday was World MS Day. This day was created to bring to light, worldwide, the life altering illness of Multiple Sclerosis to many who wouldn’t otherwise be the least bit interested. If MS hadn’t hit close to my home, I don’t know if I would have been interested. In December of 2005, my big toe became numb and thus my journey began. I was officially diagnosed with Multiple Sclerosis in 2007. My diagnosis came within 5 years. I am one of the lucky blessed ones. Many people who live with MS sometimes have a 7-10 year wait on their hands to get diagnosed. MS’s symptoms are so varied, it is not the easiest disease to diagnose. Of the 13 most common symptoms, I struggle with 9 of them and of the 9 less common symptoms, I struggle with 4. I do not have a life like those of my old friends, but I have to remind myself that I’m not them, I’m me. God didn’t make me to have someone else’s life. He made me to have my own.
I do worry at times; especially when I’m going through a horrible flare up. Flare ups limit my mobility and remind me of how much more I am at stake to lose, but Jesus asked – will worrying today add a moment to my life tomorrow? (Matthew 6:27)
No it wont, so each day, and when I’m having a particularly bad day – each moment is an exercise in faith. Sometimes the most difficult thing is remembering that Jesus is with me every step of the way, but that is exactly what is happening, whether or not I remember. When I walk with the Lord, the odds are 100% in my favor… even if I don’t feel that way every moment. God has it all in hand.
Sometimes it is easy to feel hopeless and worthless, living in this “must do” society reinforces that. This discouragement is a tactic of the enemy, but if I read the promises in God’s word, I will come to realize that I’m not worthless or hopeless, in fact, I am priceless. And although I do not have a high powered job and there are days when I can not even stand up straight- that doesn’t mean I cant be kind to you or give you an encouraging word. Sometimes those are the very things that make my day worthwhile!
Many times, my doctors seem to think I don’t understand the scope of my health issues, but they don’t understand the scope of my God. He’s all types of wonderful and amazing. He is the one who takes care of me. (Psalms 121:5 NLT) That knowledge carries me through my very worst days.